PatientsLikeMe

PatientsLikeMe: Real-World Health Data Sharing & Community

Join the largest community of patient advocates, share your health data, and help improve treatments for rare and chronic conditions.

What is PatientsLikeMe?

PatientsLikeMe is an online platform founded in 2004 that allows patients to share their health data to help improve research and connect with others managing similar health conditions. Its mission is to help patients learn from real-world outcomes.

On the platform, patients can track their symptoms, treatments, and health over time. They can share as much or as little information as they like, including details on diagnoses, medications, symptoms, quality of life, and more. This data is aggregated anonymously to reveal trends and insights that can accelerate research and drug development.

A key benefit of PatientsLikeMe is that it connects patients dealing with similar illnesses so they can share experiences and advice. There are currently over 800,000 members in the community spanning over 2,900 health conditions. Members often describe feeling relieved and empowered after connecting with others in this way.

While the platform is free for patients, PatientsLikeMe does sell anonymized and aggregated data to pharmaceutical companies and research organizations to further research on treatments. Some criticize this as exploitative while others argue it advances care. Overall the platform aims to give patients more control over and visibility into research for their conditions.

PatientsLikeMe Features

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